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Investigación
Investigación sobre Anomalías Congénitas
Publicaciones destacadas
Social/economic costs and health-related quality of life in patients with histiocytosis in Europe. Eur J Health Econ. 2016 Apr;17 Suppl 1:67-78
Iskrov G, Astigarraga I, Stefanov R, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada de la Paz M, Schieppati A, Taruscio D, Péntek M, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network.
PUBMED DOISocial/economic costs and quality of life in patients with haemophilia in Europe. Eur J Health Econ. 2016 Apr;17 Suppl 1:53-65
Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada de la Paz M, Taruscio D, Schieppati A, Iskrov G, Gulácsi L, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network.
PUBMED DOISocial/economic costs and health-related quality of life in patients with cystic fibrosis in Europe. Eur J Health Econ. 2016 Apr;17 Suppl 1:7-18
Chevreul K, Michel M, Brigham KB, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada de la Paz M, Taruscio D, Schieppati A, Iskrov G, Péntek M, von der Schulenburg JM, Kanavos P, Persson U, Fattore G; BURQOL-RD Research Network.
PUBMED DOISocial/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe. Eur J Health Econ. 2016 Apr;17 Suppl 1:89-98
Péntek M, Gulácsi L, Brodszky V, Baji P, Boncz I, Pogány G, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada de la Paz M, Taruscio D, Iskrov G, Schieppati A, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G; BURQOL-RD Research Network.
PUBMED DOI